Tuesday, November 03, 2009

Improvements All Around

I had a great day yesterday! Every other Tuesday I drive an hour and half into Boston to the Dana-Farber Cancer Institute to see my oncologist. They do blood work, look at all my skin issues, and listen to me breathe. Every six weeks I have a Pulmonary Function Test, and every few months I get an infusion of immunoglobulin, which is a natural germ fighter we all have in us, but mine goes down every few months.
This week I had a scheduled PFT, and my scores were awesome! For the test you go in a big class box and blow into a big tube, doing the breathing in different ways. [That's not me in the picture, I found it on the internet.] There are 4 categories that get measured, and they all went up significantly from the last time. In fact, they were the best results since July 2008! David the respiratory therapist, and I were high-fiving all over the place! Because of the excellent results, one of my medications was lowered, and the next step will be to stop taking it completely. I have many more medications to outgrow, but one down will be very exciting.
I also had to do a few things for a study in which I am participating. Dana-Farber is a major research hospital, so I've been able to participate in a couple of drug trials, as well as studies that just track how I'm doing. Part of this one is to walk 6 laps of a certain hallway. I've never been able to do more than 2 and a half, and this time I did all 6! Plus, when I finished I wasn't exhausted and was able to stand and talk to the nurse, just a little winded.
In the last couple of months I've been feeling SO much better, but it's nice to have measurable results as well. In the past I've been a litlle cavalier about avoiding germs, but I'm not taking any risks to mess it up now, that's for sure. I'll be wearing the mask and gloves and using Purell all over the place to make sure this improvement continues.
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14 comments:

Jenn said...

That is wonderful. Congratulations!!!

Vodka Logic said...

Stay well, been thru so much so far..so well done. xx

a painter said...

So happy for you! There is nothing wrong with avoiding germs. Keep on doing whatver you are doing and stay well!

mannequin said...

One of the best things about blogging for the past year is seeing the improvement in your health Elizabeth.
I truly mean that. You are one very special woman. And so funny!

Cindy said...

Congrats! You are on the way.
cindy

Justine said...

That's just fabulous news all around! Woot woot! I cannot wait to share the day with you when you're able to dance around your yard! Naked!

Justine :o )

SmilingSally said...

Woo Hoo! Great news, Elizabeth. I know how good it feels to see positive steps toward good health. I'm happy for you.

Christine said...

Congrats on the great numbers! WooHoo!
Wishing you a wonderful day:)

Anonymous said...

I am so happy for you, Elizabeth! ~Kari

♥georgie♥ said...

That is such GREAT news Elizabeth! I am over-joyed for you

maya said...

Congratulations!!

Tina said...

Awesome, awesome, awesome. I'll keep praying that it continues to go so well.

Fine said...

Congratulations!!
Great news, I am happy for you.

bettyl said...

So glad to hear the good news!